Monday, January 26, 2009
joints
just a prayer request... we were all noticing that matt's little arms and legs are so hard to straighten to swaddle, harder than normal. it turns out that his joints are freezing (i cannot remember the name for it), which is a symptom of his hpc (holoprosencephaly). "r" thinks he will start some meds that will help relax him, but it will also change his personality a bit, in that he will be super tired. i guess that's not too different from how any newborn is, but he may have to be on them for the remainder of his life. just pray that he won't be in pain, and that his little muscles will relax.
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I have just discovered this precious blog for little miracle Matt. He captivates me, to say the least. Miller Grace's muscles were also very taught and her joints had not been flexed in some time. Medication did help her loosen up a little, but they did sedate her, too. I am praying for each of you as you walk this road with this precious baby destined for Heaven. It's hard on your hearts, but take it from a girl who knows that the joy of knowing such a wonder will always outweigh the pain. Thanks for sharing baby Matt with me!!
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