Monday, January 26, 2009
just a prayer request... we were all noticing that matt's little arms and legs are so hard to straighten to swaddle, harder than normal. it turns out that his joints are freezing (i cannot remember the name for it), which is a symptom of his hpc (holoprosencephaly). "r" thinks he will start some meds that will help relax him, but it will also change his personality a bit, in that he will be super tired. i guess that's not too different from how any newborn is, but he may have to be on them for the remainder of his life. just pray that he won't be in pain, and that his little muscles will relax.
Posted by amy at 9:01 AM