rollercoaster

i wanted to thank you all for going on this roller coaster with us. nothing is for sure, or determined, or whatever medical term you'd like to insert. but things don't look good. matt is back home, i snugged him for a moment earlier (he's super snuggly). i personally don't understand anything but that God is sovereign. and He is sovereign over this. He even must be sovereign over the fact that someone mentioned hope and then it all seemed to fall apart. why would that happen? how could it happen that we are in a place of contentment, sad, but understanding that there is no hope for matt's little life to be extended, to jumping for joy that there is a CHANCE that he could be healed, and then back to square one. back the original diagnosis. hydroencephaly, life span, less than 12 months. and this is where God provides His peace, and He has. but i am not even his mommy and my emotions feel like conditioning week in high school sports. spent. all done. in pain. please keep praying for "r and s" and their emotions. their faith has not wavered in any of this, and it is such a testimony to me and all who know them. thank you to all of you who check in on him and pray for him. we will continue to do what we were doing, following his life, documenting and posting all the new experiences he has as he is loved endlessly.